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Friedrich Ataxia

Available for qualified participants

Friedrich Ataxia

Available for qualified participants

CenExel CNS is looking for participants with Friedreich Ataxia for a clinical trial. Friedreich Ataxia (FA) is a rare and inherited disease causing movement problems and progressive damage to the nervous system. Nerve fibers in the spinal cord and peripheral nerves degenerate, weaken, and become thinner. Peripheral nerves signal muscles to generate movement by carrying information back and forth between the brain and the body. To a lesser degree, the cerebellum (which coordinates balance and movement) also degenerates. Symptoms usually become noticeable between 5 and 15 years old, although they may appear after age 25.

Friedreich Ataxia does NOT affect thinking and reasoning abilities though – cognitive functions remain.

Symptoms may include:

  • Unsteady balance and difficulty walking (gait ataxia)
  • Awkward movements and impaired muscle coordination (ataxia), getting worse over time
  • Loss of normal reflexes, especially in knees and ankles
  • Impaired sensory functions
  • Increased muscle tone (spasticity)
  • Trouble swallowing (problems coordinating tongue and throat muscles)
  • Hearing or vision loss
  • Fatigue
  • Slowness or slurring of speech (dysarthria)
  • Curving of the spine (scoliosis)
  • Heart disease or diabetes

Friedreich Ataxia can shorten life expectancy, but some people with less severe cases live into their sixties or beyond.

 
We have helped tens of thousands of patients in similar studies.
Space in this study is limited. To be considered, please fill out the form or call 866-787-4257.

STUDY DETAILS

No cost studies are currently available for qualified participants.

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No health insurance required

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Compensation for time and travel up to $3,400

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Male / Female

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18-55 years old

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3771 Katella Ave, Suite 300 Los Alamitos, CA 90720

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CenExel CNS is one of our premier clinical research facilities in California. For over a decade, we’ve helped improve the quality of life for everyone by researching new medications and treatments. Our state-of-the-art facility is held to the highest standards of cleanliness and quality.

Board-Certified Physicians

Your safety is our greatest concern. Every procedure at CenExel CNS is overseen by expert medical staff and performed by some of the most well-respected board-certified physicians in the industry, each with many years of experience in their respective specialties.

FDA-Approved Procedures

Rest assured, you are not signing up for treatment with “experimental” methods. iResearch only uses FDA-approved methods as if you were at any other hospital or clinic. Our research is focused on the medication associated with those methods.

Frequently asked questions

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What is a CenExel Center of Excellence?

CenExel Centers of Excellence provide unparalleled medical and scientific support in the design and execution of clinical trials. Their attention to detail assures quality, reliable results and has helped CenExel to consistently achieve and exceed patient recruitment goals. They have conducted thousands of studies, the variety and complexity of which have resulted in a great depth of experience and insight for the principal investigators and research staff in each facility. CenExel Centers of Excellence deliver the engagement, expertise, and results to ensure that clients achieve their clinical research goals.

How do clinical trials work?

The study procedures and process will vary depending on the type of clinical trial you participate in. Before you begin a study, the process and all procedures for that study will be explained to you. Throughout the study, the Study Coordinator and the Principal Investigator will assist you and can answer any questions you have. They will check your health at the beginning of the trial, give you specific instructions for participating in the trial, monitor you carefully during the trial, and stay in touch with you after the study.

Some clinical trials involve more tests and doctor visits than you would normally have for your illness or condition. Your participation will be most successful if you carefully follow all instructions you are given and stay in contact with the research staff.

How safe are clinical studies?

There are many safeguards in place that all companies must follow when conducting clinical trials.

The Food and Drug Administration (FDA) is the regulatory agency that oversees all clinical research conducted in the United States. It is their responsible to protect the rights and as much as possible, the welfare of subjects participating in clinical trials. They ensure that data collected from clinical trials is of the highest quality and they are the agency that determines whether a new treatment should be sold in the US. Several organizations and individuals are governed by FDA regulations including clinical investigators, sponsors (the companies developing the treatments), Contract Research Organizations (companies that help conduct the studies), and Institutional Review Boards (groups that are responsible for ensuring the safety and welfare of study participants).

Good Clinical Practice (GCP) guidelines are another safeguard implemented to protect the safety of subjects. These guidelines encompass federal regulations and industry-accepted standards that govern clinical trials on humans. These regulations and standards apply to the conduct of the studies, record keeping, informed consent of subjects, collection of scientific data, and submission of information needed for the FDA to determine whether a new treatment should or should not be sold in the US. All companies must follow these guidelines when conducting clinical research.

An Institutional Review Board (IRB) is a committee that is formally tasked by an institution to review, approve, and monitor research involving human subjects. IRBs ensure that the risks to subjects are minimized; that subjects are adequately informed about the trial and the implications it will have on their treatment; that study protocols are modified, when necessary, to ensure safety; that risks are reasonable in relation to the anticipated benefits and the importance of the knowledge to be gained; that subject selection is equitable and that no classes of patients are discriminated against; that informed consent is obtained; that there is a provision for safety monitoring in the research plan; and that here are adequate provisions for the privacy and confidentiality for subjects and the data collected.

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